Breaking bad news, truth telling, informed consent and clinical trials

Effect of breaking bad news on patients' perceptions of doctors
Barnett MM (2002)
Journal of the Royal Society of Medicine 95: 343-347

Communication and informed consent in phase 1 trials; a review of the literatureCox A, Fallowfield L, Jenkins V (2006)
Supportive Care in Cancer 14 (4): 303-309

To tell or not to tellDein S, Thomas K (2002)
European Journal of Palliative Care 9 (5): 209-211

Cancer by another name: A randomised trial of the effects of euphemism and uncertainty in communicating with cancer patients
Dunn SM, Patterson PU, Butow PN, Smartt HH, McCarthy WH, Tattersall MHN (1993)
Journal of Clinical Oncology 11 (5): 989-996

Psychological outcomes of different treatment policies in women with early breast cancer
Fallowfield LJ, Hall A, Maguire P, Baum M (1990)
BMJ 301: 375-380

Attitudes of patients to randomized clinical trials of cancer therapyFallowfield LJ, Jenkins V, Brennan C, Sawtell M, Moynihan C, Souhami RL (1998)
EJC 1998 34 (10): 1554-1559

Clinicians' attitudes to clinical trials of cancer therapyFallowfield LJ, Ratcliffe D, Souhami R (1997)
European Journal of Cancer 33 (13): 2221-2229

Participation of patients in decisions about treatment for cancerFallowfield LJ (2001)
British Medical Journal 323: 1144

Communicating with patients in the context of medical error
Fallowfield LJ, Fleissig A (2004)
Healthcare Risk Report National Patient Safety Agency, London

Truth may hurt but deceit hurts more: communication in palliative careFallowfield LJ, Jenkins VA, Beveridge HA (2002)
Palliative Medicine 16: 1-7

Communicating sad, bad and difficult news in medicineFallowfield LJ, Jenkins V (2004)
Lancet. 363 (9405): 312-19

Results of an intevention study to improve communication about randomized clinical trials of cancer therapyFleissig A, Jenkins V, Fallowfield L (2001)
European Journal of Cancer 37: 322-331

Receiving bad news: Experiences of family membersFriedrichsen MJ, Strang PM, Carlsson ME (2001)
Journal of Palliative Care 17(4): 241-247

The disclosure of information to cancer patients and its relationship to their mental state in a consultation-liaison psychiatry setting in JapanHorikawa N, Yamazaki T, Sagawa M, Nagata T (1999)
General Hospital Psychiatry 21 (5): 368-373

Disclosure of true diagnosis in Japanese cancer patients
Hosaka T, Awazu H, Fukunishi I, Okuyama T, Wogan J (1999)
General Hospital Psychiatry 21 (3): 209-213

Information needs and awareness of diagnosis in patients with cancer receiving chemotherapy: a report from Greece
Iconomou G, Viha A, Koutras A, Vagenakis AG, Kalofonos HP (2002)
Palliative Medicine 16 (4): 315-21

The preferences of 600 patients for different descriptions of randomisation
Jenkins V, Fallowfield L, Cox A (2005)
British Journal of Cancer 92 (5): 807-810

Discussing randomised clinical trials of cancer therapy: Evaluations of a Cancer Research Training ProgrammeJenkins V, Fallowfield L, Solis-Trapala I, Langridge C, Farewell V (2005)
British Medical Journal 330 (7488): 400-06

How do doctors explain randomized clinical trials to their patients?
Jenkins VA, Fallowfield L, Souhami R, Sawtell M (1999)
European Journal of Cancer 35 (8): 1187-1193

Changes in levels of hope after diagnostic disclosure among Taiwanese patients with cancer
Lin C, Tsai H, Chiou JF, Lai YK, Koa CC, Tsou TS (2003)
Cancer Nursing 26 (2): 155-60

Communication in the cancer 'bad news' consultation: patient perceptions and psychological adjustment
Mager W, Andrykowski M (2002)
Psycho-Oncology 11 (1): 35-46

The physical, mental and social impacts of telling prostate cancer patients the true diagnosis
Noguchi R, Oda E, Ohashi Y (1997)
Nippon-Hinyokika-Gakkai-Zasshi Aug 88 (8):752-61

Psychological responses of patients receiving a diagnosis of cancer
Schofield P, Butow P, Thompson JF, Tatersall MH, Beeney LJ, Dunn S (2003)
Annals of Oncology 14 (1): 48-56

Volunteers or victims; patients' views of randomized cancer clinical trialsSlevin M, Mossman J, Bowling A, Leonard R, Steward W, Harper P, McIllmurray N, Thatcher N (1995)
British Journal of Cancer 71: 1270-1274

Communication of a cancer diagnosis: patients' perceptions of when they were first told they had cancer
Walsh, D, Nelson K (2003)
American Journal of Hospice and Palliative Care, 20 (1): 52-6

Does truth telling improve psychological distress of palliative care patients? A systematic review
Wilkinson SM, Fellowes D, Leliopoulou C. (2002)

Does truth-telling influence patients' psychological distress?
Wilkinson SM, Fellowes D, Leliopoulou C (2005)
European Journal of Palliative Care 12 (3): 124-126


Useful websites and DVDs for breaking bad news

Communicating Significant News about Cancer - the Patients' Perspective.
DVD - available from South East London Cancer Network or Macmillan Cancer Support.

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The course is aimed at senior healthcare professionals who work primarily in the field of cancer and utilises an interactive workshop approach.
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The Cancer Patient Experience Survey 2011/12

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